Seizure Awareness (March 2025)

Seizure Awareness

Unfortunately, our community is accustomed to seizures, especially epilepsy that cannot be controlled effectively with medication. All of our staff complete general training and then specific training for any students they support.

Parents have become our greatest resource as they share what medications, interventions, and doctors have best helped them. One recent referral is Nayzilam, a prescription rescue medication used to stop a seizure.

We are still learning why epilepsy and autism are so entwined (comorbid) and the most effective ways to treat it since many of the medications are ineffective or cause serious, adverse side effects in autistics.

A main concern is the injuries that result from falls during a seizure. These injuries can lead to further medical procedures and even death. The fear of falls can limit where our students feel safe and create barriers to their accessing work and community.

Given the medical needs and constant supervision required, these students need 24 hour caregivers that can provide their daily medical care and emergency interventions.

One of our young adult students shared a recent experience with us: "My friend had a seizure recently and it was terrifying. Luckily her mom knew what to do because this is not new. She has epilepsy and autism so it is just her reality. But it shouldn't be. She needs and deserves solutions."

Our research highlighted that epilepsy is a leading cause of premature death in autistics, increasing mortality rates by more than 800%.

1.2% of the US population have active epilepsy and 1 in 26 people will have epilepsy at some point in their lifetime. If you are autistic, it raises to 12% and mainly impacts females.

This is an issue that should be researched to create effective treatments and prevent injuries and deaths.

Learn more about this issue and spread awareness

Other highlights:

• Bunnyman Brewery: Join us again this month on March 22nd at Bunnyman Brewing! We had a GREAT time last month and hope to see you there! Please RSVP 

• 2 Across: Check out a sensory-friendly performance of 2 Across on March 26th.

• Art of the Brick: For all of you who love legos! Art of the Brick is holding a sensory friendly day on April 1st. 

• Virtual Chemistry Classes: If you're interested in chemistry, check out Casey Noll's classes for those who spell and type to communicate. Details below.

Summer group registration - opening soon!

Sincerely,The UT Team